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Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (HR 2410, 115th Congress)
The Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (HR 2410) is designed to reauthorize expired federal sickle cell disease programs and establish new federal sickle cell disease research, surveillance, prevention, and treatment programs.
HR 2410 amends section 399V of title III of the Public Health Service Act (42 U.S.C. 280g-11 et seq.) to authorize the Department of Health and Human Services to undertake the following research and surveillance efforts:
- Establish research efforts to explore causes and cures for the disease.
- Award grants to entities in up to 20 states that demonstrate collaboration with other communal organizations and healthcare providers to:
-Collect data on the prevalence and demographics of sickle cell disease
-Organize public health initiatives
-Research potential prevention and treatment strategies
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.